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We would like to thank the following organisations for their support for IPPC 2007:
International Patient Organisation for Patients with Primary Immunodeficiencies (IPOPI)
IPOPI is an international organization whose members are national patient organizations for the primary immunodeficiencies (PID's). It was formed to benefit and serve its members and patients with primary immunodeficiencies. Its pupose is to unite the experience, expertise, resources and influence of its members in order to achieve worldwide improvement in the care and treatment of patients with PID's.
Visit our website at http://www.ipopi.org
World Federation of Hemophilia
 The World Federation of Hemophilia is an international patient
organization with national member organizations in 107 countries around
the world. Throughout our history of over 40 years we have worked to
ensure the safety of treatment for hemophilia and other inherited
bleeding disorders, educate care-givers and patients and build a
coalition of manufacturers, government and patient organizations to
reach our goal of “Treatment for All.”
Alpha One Foundation
Alpha One Foundation was established in 2001 to promote research into Alpha 1, to improve diagnosis, treatment and to improve life expectancy and lifestyle of people with this condition.was established in 2001 to promote research into Alpha 1, to improve diagnosis, treatment and to improve life expectancy and lifestyle of people with this condition.
Visit our website at http://www.alpha1.ie
The ITP Support Association
Founded in June 1995, its aims are to promote the welfare of ITP patients, fund clinical research and to collaborate with the medical profession in collating and disseminating clinical data. The Association provides patient support, a contact network, organises annual conventions, seminars for health professionals and publishes numerous booklets and facsheets on ITP related subjects in addition to its quarterly newsletter, The Platelet. Assisted by 6 eminent medical advisors it is the only UK organisation supporting patients with ITP. The ITP Support Association is a non profit-making registered charity, and all Association workers are volunteers.
Visit our website at http://www.itpsupport.org.uk
The Guillain-Barré Syndrome Foundation International
The Guillain-Barré Syndrome Foundation International was founded by Robert and Estelle Benson as a means of helping others deal with this frightening disorder. Since its inception in 1980, self-funded with less than a handful of volunteers, this grass roots effort has become an international organization with 23,000 members in 160 chapters on five continents.
Visit our website at http://www.gbsfi.com
Jeffrey Modell Foundation
The Jeffrey Modell
Foundation was established by Vicki and Fred Modell in memory of their
son Jeffrey, who died at the age of 15 of a Primary Immunodeficiency.
The Foundation is dedicated to early and precise diagnosis, meaningful
treatments, and ultimately cures of Primary Immunodeficiencies. Visit our website at http://www.info4pi.org
European Haemophilia Consortium (EHC)
The European Haemophilia Consortium is the umbrella organisation of 44
national Haemophilia Organisations in Europe and exists since some 20
years to improve the quality of life for people with haemophilia and
their families in Europe.
Its Steering Committee works on an honorary basis to improve diagnostic
and treatment facilities, to establish National Haemophilia Programs
and ensure adequate supply of safe factor concentrates, promote
patients' rights and raise ethical issues, follows and influences
developments in European Health Policy, undertakes surveys of the
status of haemophilia care in member countries and stimulate research
in all fields related to haemophilia.
Visit our website at http://www.wfh.org
European Society for Immunodeficiencies (ESID)
The European Society for Immunodeficiencies (ESID) is a non-profit organization having multiple aims. The main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases and also to promote research on causes, mechanisms and treatment of these disorders. Recently ESID has initiated an educational program.
ESID was established as an informal group in 1983 and became a society in 1994. ESID organizes bi-annual scientific meetings and the next meeting will be held 5-8 October, 2006 in Budapest, Hungary.
Visit our website at http://www.esid.org
The Immune Deficiency Foundation
The
Immune Deficiency Foundation (IDF), founded in 1980, is the national
organization in the United States dedicated to improving the diagnosis
and treatment of patients with primary immune deficiency diseases
through research, education and advocacy. IDF supports the primary
immune deficiency community through research and medical programs that
improve diagnosis and treatment, educational programs, materials and
support for patients and family members and advocacy to promote
healthcare legislation and administrative policy. Visit our website at http://www.primaryimmune.org/
The Primary Immunodeficiency Association (PiA)
The Primary Immunodeficiency Association (PiA) is a national support
group and registered charity for people with primary
immunodeficiencies, their families and friends. It offers support to
members through regional meetings, help with seeking appropriate
medical consultation and assistance with securing state benefits.
Visit our website at http://www.pia.org.uk/
Associazione Immunodeficienze Primitive (AIP)

AIP was founded to serve and benefit people with primary immunodeficiencies.
A non-profit organisation, its main purposes are to:
- promote awareness and dissemination of correct information on primary immunodeficiencies
- promote legislative action to favour patients
- inform patients and their families of adavances in reasearch, diagnosis an therapy- encourage and support research
- garantee patients treated in hospital a optimal level of care, in an environment which respects and values the needs of the patients
- take an active role in blood products availability and safety issues.
Supporting Media
IB/PN
Published since 1984, International
Blood/Plasma News (IB/PN) is a leading source of business information
about the blood/plasma industry worldwide. It is published monthly by
The Marketing Research Bureau, which is known as an authoritative
source of market data and analysis in the areas of blood, plasma and
biotechnology-based protein therapeutics. Visit our website at http://www.marketingresearchbureau.com/ibpn.htm
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